page is about my son, his disability
My little man was
born almost 9 years ago, In April 1996.
According to the midwife(*) he was a few days early,
but I had this distinct
Anyway, he behaved just like any other baby does
when they are...well...babies.
Until he started walking.
That's when we noticed he was always walking on his toes.
The days went by and Robin kept walking on his toes.
Strange, we said, and called
The doctor had a look and agreed with us
the kid ought to walk on his whole feet
Unfortunately it took a very long time for us
to get an appointment with the
The doctors (threre were two of them) looked at Robins legs.
After a loooong while they told us that
"this is probably a motoric
were told that the only thing that could be done at that stage
So then we started going to a fysiotherapist at the regional habilitation center.
months later, after MANY turns and visits at the habilitation
we got an
appointment for MR.
A few weeks later we got a call from the habilitation centre.
i can tell you this:
there are a lot of things i would rather listen to
to hear a doctor
The final diagnosis for Robin is
A damage to his brain that will
be there for the rest of his life.
Since that day we have been to uncountable visits at the habilitation
used up lots of
November 2003 Robin had a BOTOX-treatment.
a new fysiotherapist.
He works in a different wau that the old one.
On Tuesday, March 29, we leave
for the hospital.
We finally have a date for a surgery!!
13th August 2005
It is almost 5 months now since the surgery.
Robin had to wear casts on both legs for 6 weeks
After the casts were removed
there was an intense period of training.
Robin hasummervacation now.
In a little over a week school starts again
and he is really happy
13th July 2006
Eleven months since the last commentary here. Oh boy, I really need to sharpen up!
It is now 14 months since the
and everything is going as expected.
We still practice every morning
and every evening
to prevent the hamstrings to get stiff
Balance isn't quite as it should
but getting better each day.
I have no need for updating
this page any longer, since Robin is now as any other
Thank you for reading my story!